Dear Friends, Family and Members & Supporters of Mastocytosis Society Canada,
My name is Delina and I have been a member and support leader for this amazing forum for three years. My Daughter Emma was diagnosed in 2008 and our journey began.
Emma had already been attending Luxton School in Winnipeg for five years when she was hit hard by Masto. It was nearly impossible for her to attend class as everything was a trigger and she had no support. I spent the first few months of her grade three-year running back and forth to the school bringing extra clothes and trying to control the hives. They managed to get 30 minutes of funding to watch her during recess so she could stay indoors, but it was quickly apparent that this was not enough!
That’s when the amazing administration of Luxton went into overdrive. Not only did they receive full-time funding for Emma, but also occupational therapy, a counselor and a heat-air conditioning unit that was permanently installed to control the temperature in her class. The Administration of Luxton School and Winnipeg 1 School Division are the reason my Daughter will finish out her Elementary education in the place she started.
It is time to “PAY THAT FORWARD”.
On May 10th 2012 Luxton School will host a Fundraiser in support of Mastocytosis Society Canada. Most of the money raised will go towards producing a video aimed to educate Doctors and Educators on the unique circumstances of pediatric patients with Masto, who wish to attend the public school system. It is Emma’s wish that all school-aged children have the same opportunities as her!
The main component of the fundraiser will be a SILENT ART AUCTION. If you, or anyone you know has a piece of art [painting, quilting, knitting, anything made by hand] that they could donate it would be appreciated! I would like to have a table representing MSC members. If shipping is an expense you can’t afford please contact me and I will make arrangements.
That same photo will be on the MSC main website at [a href="mastocytosis.ca/"]mastocytosis.ca/[/a] soon! These t-shirts and pins will be available for purchase in the near future. Any monies raised will go towards future projects for MSC.
In closing my Family and I wish to for your years of support. I can be reached at  586-3495 or email@example.com Delina, Mike, Ben, Zeph, Sophie, and of course, Emma. PLEASE PASS THIS POSTING FORWARD, SPREAD IT FAR AND WIDE TO EVERYONE YOU KNOW!
Added by Carrie:- Delina Rissin kindly took on the large volunteer position of MSC National Pediatric & Parent Support Leader. She just won't call herself that, so I'm just letting you know :-)
Hi Everyone just a quick post to let you all know that the May 10th fundraiser was a smashing success and a truly magical evening. to everyone who contributed. I will put photo's etc up once we have the clearance to do so. I will also write an account of the evening and post once I get my feet back on the ground. Thanks again, Delina
Carrie: Dear everyone,it appears MSC is not managing this forum. For support and info, please see mastocytosis.ca and/or groups on social media sites. I also highly recommend www.mastattack.org/ . My best wishes to everyone.
Sept 26, 2017 11:36:38 GMT -5
Rosy: This board dying makes me so sad! I've yet to find somewhere else that is as Nice and "community" orientated for Canadians.
Jun 30, 2018 19:52:06 GMT -5
Carrie: Hey Rosy, I’m sorry too. It couldn’t be helped due to health. Maybe reach out to Shawna via the main website at Mastocytosis.ca
Nov 29, 2018 21:41:50 GMT -5