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No New Posts WELCOME to Mastocytosis Society Canada Support Forum

General board information

Moderator: Shawna

4 9 Mastocytosis Society Canada ONLINE
by Carrie
Nov 9, 2012 8:10:50 GMT -5
No New Posts EMAIL support@mastocytosis.ca TO REGISTER

Mandatory Registration Procedure

Moderator: Shawna

5 10 Problems logging in after registering
by Carrie
Apr 3, 2013 22:35:16 GMT -5
No New Posts DONATE or JOIN via PayPal & Fundraisers!

4 19 MSC Fundraising Projects!! Deals, offers, etc.
by Carrie
Mar 15, 2013 20:37:19 GMT -5

How to Navigate the forum, Glossary, etc.

Board Threads Posts Last Post
No New Posts What to read first

Guiding new members to most important information first

Moderator: Shawna

3 10
No New Posts How To: Search, Post, Share Links, etc.

Forum navigation

10 45
No New Posts Glossary of terms

Medical terms defined

1 5

Mastocytosis & Mast Cell Disorders

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No New Posts Mastocytosis & Mast Cell Disorders

46 530
No New Posts Discussions: Symptoms, Triggers and Test Results

Ask questions, share etc. here

74 633
No New Posts Physician Referrals

19 190
No New Posts Medications, Treatments & Related News

97 691
No New Posts Medical & Financial Assistance Programs in Canada

Medical Plans per province, Financial Assistance Programs (Banking, Insurance and Government)

Sub-board: Medication & Disability income programs per Province/Territory

28 97
No New Posts Medical Research

38 552
No New Posts Medical Researchers

4 18

**EMERGENCY MEDICAL PROTOCOLS**

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No New Posts Anaphylaxis

Anaphylaxis

23 248
No New Posts Diagnostics, Surgeries & Medical Tests

Diagnostics, Surgeries & medical tests

25 203
No New Posts Exercise and Physical Fitness

Exercise and physical fitness

4 15

Support Network

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No New Posts Meetings & Mastocytosis Society Canada

Local, National and International events

28 296
No New Posts POLLS/SURVEYS

Polls/Surveys of medications, tests, diagnoses, etc.

7 25
No New Posts Healthcare in Canada

General news, sharing thoughts and experiences about our healthcare system

Sub-board: Healthcare News by Province or Territory

47 225
No New Posts Emotional Support, Venting, Laughing, Whatever!

41 237
No New Posts Introduce yourself here and share your story

Introduce yourself, share your story from symptoms to diagnosis

122 2,509
No New Posts Life after diagnosis

Share how your life is after diagnosis. All about living daily with mastocytosis and mast cell disorders

60 647
No New Posts Our Happy Place :-)

Share the happy!! Fun, music, uplifting stuff, etc.

8 42
No New Posts HOT TOPICS

A complete free zone to talk about anything. *Not Moderated by anyone*

18 199
No New Posts Patient to Patient Direct Support

Members offering direct patient support to others by email and/or phone

2 8
No New Posts Parent to Parent Connections

Parents helping Parents of children with mastocytosis

26 305
No New Posts Kids Zone!

A place for children of all ages to share, have fun and correspond with other kids.

1 133
No New Posts Caregivers Corner

A place for caregivers, friends and loved ones to support each other.

7 46
No New Posts Food Safety Issues & Special Diets for mast cell disorders

foods

48 206
No New Posts Natural Health Treatment

40 168
No New Posts Exercise & Maintaining Health

17 37
No New Posts Environment & Toxins

10 33
No New Posts Skincare, cosmetics, cleaning detergents, etc.

Homemade and commercial remedies

18 142
No New Posts Clothing, Bedding,Home support items

3 7
No New Posts Books/Videos/Articles

For medicine, education, research AND help, hope and inspiration

28 40
No New Posts Movie, TV, Radio recommendations

Movie, TV, Radio programs

19 38

Other

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No New Posts Rare Disease Board

Announcements, articles and information specific to Rare Diseases and Disorders

3 5
No New Posts Links

31 45

Legend

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Forum Information & Statistics

Board Statistics
Threads and Posts
Total Threads: 969      Total Posts: 8,668
Last Updated: Problems logging in after registering by Carrie (Apr 3, 2013 22:35:16 GMT -5)
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Most Users Online: 76 (Jul 15, 2012 10:27:02 GMT -5)
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Shoutbox

Welcome to Mastocytosis Society Canada support forum! Say hello and leave us messages here.....
zoebug: I am new here but I see my sister is not. Hi tferguso! Jan 14, 2014 16:44:32 GMT -5
Mastomom2: Delina, I have been hoping to get a doctor to fill out papers for disability tax credit. He seems to be totally lost on how to do it. He just wants the kids to go through more and more tests. Now it's allergy testing he wants to send them to. Any advice? Jan 17, 2014 11:41:25 GMT -5
april: My husband has been seeing a specialist at sunnybrook hospital in toronto however he keeps doing tests and says that there are no facts to support a diagnosis of mast cell activation syndrome however my husband is so ill and has majority of the symptoms. Jan 31, 2014 18:51:05 GMT -5
Carrie: Mastomom2 - email Delina directly here - fear5@mts.net :) Feb 5, 2014 0:39:45 GMT -5
Carrie: April - Ask the specialist to contact Dr. Peter Vadas at St. Mike's Hospital. MCAS is notoriously difficult to prove via medical tests. Dr. Vadas speaking with the doctor will help the process. I hope this helps. If not, come back and let us know. Feb 5, 2014 0:41:04 GMT -5
Frugalmama: Carrie - what diagnostic criteria does Dr. Vadas use to diagnose MCAS? Will he take out of province patients? I'm still trying to find someone that is wiling to help my mom. Feb 15, 2014 20:30:36 GMT -5
Carrie: Frugalmama, so sorry I'm very rarely here anymore. I'll email you :-) Feb 20, 2014 18:36:40 GMT -5
jessicaq: Is nose bleeds a symptom? My son has had a few recently and I'm not sure if it is masto related or maybe just the cold weather. Feb 24, 2014 17:15:04 GMT -5
Carrie: Yes nose bleeds can be a symptom. Could also be impacted by cold weather too. Feb 26, 2014 18:17:08 GMT -5
bindy55: My Biopsy and blood test Tryptase came back negative ...so do I want to progress to a Bone marrow test and why?? Mar 26, 2014 12:19:29 GMT -5
scrotzulla: Hi everyone.I'm new here and still waiting for a proper diagnosis.In my reactions lately, I'm getting severely dehydrated and my blood pressure drops significantly and I go into shock within a few minutes. What's the best thing to do in this instance? Apr 7, 2014 14:03:50 GMT -5
Paula: Ear meds? What medications are safe? or alternate treatment? Itchy/irritated/tinnitus/blocked Dr. prescribed a drop with Cipro. Concerned re adverse reactions as I have had many to meds. Apr 9, 2014 9:08:51 GMT -5
Mars: Does anyone else have lessions on their face? Anything work on them? Apr 22, 2014 18:33:51 GMT -5
kathy59: I am new here and was just told a skin biopsy was positive for TMEP and is being sent to another city for further testing. I am feeling very overwhelmed. Where do I start? Jun 17, 2014 22:23:09 GMT -5
kathy59: My skin biopsy came back as positive for mastocytosis as well the syrum tryptase test came back high so I am now waiting for a bone marrow biopsy. Should I be getting a medical alert bracelet now or should I wait until after the bone marrow biopsy? Aug 13, 2014 14:30:37 GMT -5
Carrie: Hi Kathy59, yes I would suggest you register with MedicAlert. To start, I've summarized (as best I can) how to live with this illness on MSC main website. Read http://mastocytosis.ca section on Mastocytosis and also the Patient Experience Letter. Aug 28, 2014 10:07:18 GMT -5
pamelamerritt: Where do I go to find out if there's another member in my area? I live in Kingston, Ontario, Canada. Sept 5, 2014 18:56:22 GMT -5
jessicaq: My son was just prescribed Dicyclomine. Does anybody take this? And if so has it helped much? Sept 12, 2014 15:53:14 GMT -5
Samson1484: I've been suffering from Mastocytosis for the past 16 years without a diagnosis despite having seen over 70 doctors. My worse symptom occurs whenever I eat/drink anything. Simple food contact on oral mucosa induces an intense systemic allergic-like reactio Sept 16, 2014 19:23:13 GMT -5
Samson1484: does anybody know of a specialist in Toronto, Ontario that recognizes or is open to a possible diagnosis and treatment of Mast cell disorders? Sept 16, 2014 19:25:08 GMT -5
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