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No New Posts WELCOME to Mastocytosis Society Canada Support Forum - 1 Viewing

General board information

Moderator: Shawna

4 9 Mastocytosis Society Canada ONLINE
by Carrie
Nov 9, 2012 8:10:50 GMT -5
No New Posts EMAIL support@mastocytosis.ca TO REGISTER

Mandatory Registration Procedure

Moderator: Shawna

5 10 Problems logging in after registering
by Carrie
Apr 3, 2013 22:35:16 GMT -5
No New Posts DONATE or JOIN via PayPal & Fundraisers!

4 19 MSC Fundraising Projects!! Deals, offers, etc.
by Carrie
Mar 15, 2013 20:37:19 GMT -5

How to Navigate the forum, Glossary, etc.

Board Threads Posts Last Post
No New Posts What to read first

Guiding new members to most important information first

Moderator: Shawna

3 10
No New Posts How To: Search, Post, Share Links, etc.

Forum navigation

10 45
No New Posts Glossary of terms

Medical terms defined

1 5

Mastocytosis & Mast Cell Disorders

Board Threads Posts Last Post
No New Posts Mastocytosis & Mast Cell Disorders

48 533
No New Posts Discussions: Symptoms, Triggers and Test Results

Ask questions, share etc. here

75 640
No New Posts Physician Referrals

19 202
No New Posts Medications, Treatments & Related News

98 697
No New Posts Medical & Financial Assistance Programs in Canada

Medical Plans per province, Financial Assistance Programs (Banking, Insurance and Government)

Sub-board: Medication & Disability income programs per Province/Territory

28 97
No New Posts Medical Research

39 555
No New Posts Medical Researchers

4 18


Board Threads Posts Last Post
No New Posts Anaphylaxis


23 248
No New Posts Diagnostics, Surgeries & Medical Tests

Diagnostics, Surgeries & medical tests

26 209
No New Posts Exercise and Physical Fitness

Exercise and physical fitness

4 15

Support Network

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No New Posts Meetings & Mastocytosis Society Canada

Local, National and International events

29 299

Polls/Surveys of medications, tests, diagnoses, etc.

7 26
No New Posts Healthcare in Canada

General news, sharing thoughts and experiences about our healthcare system

Sub-board: Healthcare News by Province or Territory

47 225
No New Posts Emotional Support, Venting, Laughing, Whatever!

41 239
No New Posts Introduce yourself here and share your story

Introduce yourself, share your story from symptoms to diagnosis

126 2,568
No New Posts Life after diagnosis

Share how your life is after diagnosis. All about living daily with mastocytosis and mast cell disorders

60 649
No New Posts Our Happy Place :-)

Share the happy!! Fun, music, uplifting stuff, etc.

9 43

A complete free zone to talk about anything. *Not Moderated by anyone*

20 201
No New Posts Patient to Patient Direct Support

Members offering direct patient support to others by email and/or phone

2 8
No New Posts Parent to Parent Connections

Parents helping Parents of children with mastocytosis

26 306
No New Posts Kids Zone!

A place for children of all ages to share, have fun and correspond with other kids.

1 133
No New Posts Caregivers Corner

A place for caregivers, friends and loved ones to support each other.

7 46
No New Posts Food Safety Issues & Special Diets for mast cell disorders


49 211
No New Posts Natural Health Treatment

40 168
No New Posts Exercise & Maintaining Health

17 39
No New Posts Environment & Toxins

10 33
No New Posts Skincare, cosmetics, cleaning detergents, etc.

Homemade and commercial remedies

18 143
No New Posts Clothing, Bedding,Home support items

3 7
No New Posts Books/Videos/Articles

For medicine, education, research AND help, hope and inspiration

28 40
No New Posts Movie, TV, Radio recommendations

Movie, TV, Radio programs

19 38


Board Threads Posts Last Post
No New Posts Rare Disease Board

Announcements, articles and information specific to Rare Diseases and Disorders

3 5
No New Posts Links

31 45


New Posts New Posts No New Posts No New Posts

Forum Information & Statistics

Board Statistics
Threads and Posts
Total Threads: 984      Total Posts: 8,784
Last Updated: Problems logging in after registering by Carrie (Apr 3, 2013 22:35:16 GMT -5)
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Total Members: 515
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Most Users Online: 76 (Jul 15, 2012 10:27:02 GMT -5)
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Welcome to Mastocytosis Society Canada support forum! Say hello and leave us messages here.....
dolphin: I live in Vancouver, my daughter (age 28) is being tested for Sys. Masto. She has had significant allergies since birth and has in the past 2 years, an increasing number of symptoms (almost all that are listed). Awaiting results & referral to specialist. May 7, 2015 23:16:51 GMT -5
sheena: I live in North Bay, Ontario and have been diagnosed with cholinergic anaphylaxis as part of MCAS. My symptoms appear to be getting gradually worse despite my intense medication regime. I would love to connect with fellow sufferers in my area! May 12, 2015 4:08:50 GMT -5
lynnie: Has anyone been treated with Interferon for their Sys. Masto? Curious to know how you reacted? My tryptase levels are >300 and my symptoms have all of sudden gotten worse, increased fatigue, decreased appetite, gastro issues and food sensitives. May 23, 2015 9:51:26 GMT -5
jdean: Hello, is anyone on here from Alberta? Would like to get to know someone who also has systemic masto. Thank you! May 24, 2015 23:20:32 GMT -5
terryl: Hi, I'm Terry. I'm from North Augusta, Ontario...about an hour south of Ottawa. I am under going tests now to confirm MCAS. I'm new to this whole process . Jun 8, 2015 19:49:12 GMT -5
Heathermct: Jdean, I'm just outside of Edmonton. Diagnosed 3 years ago with indolent mastocytosis. Jun 25, 2015 12:36:16 GMT -5
Chuck69: Hello, I live in San Francisco, and we (the U.S.) doesn't have anything like this, so I'm hoping you don't mind a foreigner on your site. I saw a hematologist who was 100% positive that I have mast; she did all tests and all neg! HELP. Jun 27, 2015 20:42:48 GMT -5
Chuck69: I have been a virtual prisoner in my own home for the past 9 years. Every time I go outside my door, I come down with flu-like symptoms. I found on here somewhere about using antihistamine and ranitidine. This does help a lot, but I still get sick. Jun 27, 2015 20:47:33 GMT -5
Anyone There?: Hi, I signed up several days ago and sent an email privately as was required and still do not have access. Desperately looking for a doctor near Saskatoon, SK. Jun 28, 2015 13:31:54 GMT -5
jacquie: My 4 year old is going in for adenoid and tonsil surgery, she will be going through an anaesthetic testing. I'm scared about this. Can anyone give me some info on what could happen? Has anyone gone through this? Jul 3, 2015 20:43:46 GMT -5
jacquie: My 4 year old will need to go through surgery to remove Adenoids and Tonsils, I'm a bit worried about this. Has anyone had to go through this. I believe the anaesthetic is not good considering her health in regards to her Mastocytoma. I would like to know Jul 3, 2015 20:55:23 GMT -5
jacquie: This website is very difficult to use, it is not user friendly, I am having a hard time following other posts and I imagine it's the same with others. Can someone give me some insight on how to go about this in an easier way? Jul 3, 2015 21:06:36 GMT -5
jacquie: yes I agree, it's very hard to navigate this website. Jul 3, 2015 21:19:39 GMT -5
Fiona: Hello Everybody...is anybody out there? Aug 3, 2015 9:02:55 GMT -5
Mastomom: Hi, I find this site difficult to navigate but thought I would give it a try. My daughter was diagnosed with cutaneous masto at 9 months old. She is now 14 with anaphylactic episodes. testing for systemic masto. anyone with similar experience? Aug 4, 2015 10:07:11 GMT -5
Maria I.: Hello everyone I diagnosed with systemic masto, I'm having a bone marrow biopsy done.. I have to go under general as we all know local is a NO NO. My anesthesiologist has taken some of my fears away. Jacque I hope all is well with your daughter. Ajax Aug 6, 2015 20:54:16 GMT -5
Maria I.: Jacquei, ask your daughters doctor if she can be put on prednisone before surgery. That's what my amunolagist gave me and my anesthesiologist Agreed as well as high doeses of antihistamines. Ask the Doctor. Aug 6, 2015 21:03:26 GMT -5
arrowfairy: Hi everyone! Thanks to everyone who is on this forum and posts things. Does anyone know anything about the progression of mastocytosis/MCAS? My bloodwork has been coming back normal including tryptase levels, but I've got textbook symptoms/anaphylaxis. Sept 22, 2015 19:45:20 GMT -5
soterion: Arrowfairy, sorry I can't help, seems SM symptoms and progression varies by individuals. Sept 25, 2015 21:19:34 GMT -5
JacquieHH: Chuck69: I'm Canadian, have Systemic Mastocytosis, and belong to several support sites primarily in the US. Just signed up here today. It is difficult to navigate, but I look forward to learning more. Oct 4, 2015 20:18:44 GMT -5
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