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No New Posts WELCOME to Mastocytosis Society Canada Support Forum - 1 Viewing

General board information

Moderator: Shawna

4 9 Mastocytosis Society Canada ONLINE
by Carrie
Nov 9, 2012 8:10:50 GMT -5
No New Posts EMAIL support@mastocytosis.ca TO REGISTER

Mandatory Registration Procedure

Moderator: Shawna

5 10 Problems logging in after registering
by Carrie
Apr 3, 2013 22:35:16 GMT -5
No New Posts DONATE or JOIN via PayPal & Fundraisers!

4 19 MSC Fundraising Projects!! Deals, offers, etc.
by Carrie
Mar 15, 2013 20:37:19 GMT -5

How to Navigate the forum, Glossary, etc.

Board Threads Posts Last Post
No New Posts What to read first

Guiding new members to most important information first

Moderator: Shawna

3 10
No New Posts How To: Search, Post, Share Links, etc.

Forum navigation

10 45
No New Posts Glossary of terms

Medical terms defined

1 5

Mastocytosis & Mast Cell Disorders

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No New Posts Mastocytosis & Mast Cell Disorders

47 531
No New Posts Discussions: Symptoms, Triggers and Test Results

Ask questions, share etc. here

74 634
No New Posts Physician Referrals

19 194
No New Posts Medications, Treatments & Related News

97 691
No New Posts Medical & Financial Assistance Programs in Canada

Medical Plans per province, Financial Assistance Programs (Banking, Insurance and Government)

Sub-board: Medication & Disability income programs per Province/Territory

28 97
No New Posts Medical Research

39 555
No New Posts Medical Researchers

4 18


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No New Posts Anaphylaxis


23 248
No New Posts Diagnostics, Surgeries & Medical Tests

Diagnostics, Surgeries & medical tests

25 204
No New Posts Exercise and Physical Fitness

Exercise and physical fitness

4 15

Support Network

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No New Posts Meetings & Mastocytosis Society Canada

Local, National and International events

28 298

Polls/Surveys of medications, tests, diagnoses, etc.

7 25
No New Posts Healthcare in Canada

General news, sharing thoughts and experiences about our healthcare system

Sub-board: Healthcare News by Province or Territory

47 225
No New Posts Emotional Support, Venting, Laughing, Whatever!

41 237
No New Posts Introduce yourself here and share your story

Introduce yourself, share your story from symptoms to diagnosis

124 2,530
No New Posts Life after diagnosis

Share how your life is after diagnosis. All about living daily with mastocytosis and mast cell disorders

60 648
No New Posts Our Happy Place :-)

Share the happy!! Fun, music, uplifting stuff, etc.

9 43

A complete free zone to talk about anything. *Not Moderated by anyone*

19 200
No New Posts Patient to Patient Direct Support

Members offering direct patient support to others by email and/or phone

2 8
No New Posts Parent to Parent Connections

Parents helping Parents of children with mastocytosis

26 305
No New Posts Kids Zone!

A place for children of all ages to share, have fun and correspond with other kids.

1 133
No New Posts Caregivers Corner

A place for caregivers, friends and loved ones to support each other.

7 46
No New Posts Food Safety Issues & Special Diets for mast cell disorders


48 210
No New Posts Natural Health Treatment

40 168
No New Posts Exercise & Maintaining Health

17 38
No New Posts Environment & Toxins

10 33
No New Posts Skincare, cosmetics, cleaning detergents, etc.

Homemade and commercial remedies

18 143
No New Posts Clothing, Bedding,Home support items

3 7
No New Posts Books/Videos/Articles

For medicine, education, research AND help, hope and inspiration

28 40
No New Posts Movie, TV, Radio recommendations

Movie, TV, Radio programs

19 38


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No New Posts Rare Disease Board

Announcements, articles and information specific to Rare Diseases and Disorders

3 5
No New Posts Links

31 45


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Forum Information & Statistics

Board Statistics
Threads and Posts
Total Threads: 975      Total Posts: 8,710
Last Updated: Problems logging in after registering by Carrie (Apr 3, 2013 22:35:16 GMT -5)
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Most Users Online: 76 (Jul 15, 2012 10:27:02 GMT -5)
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Tanyalee, carol, tammyjo49, Shawna


Welcome to Mastocytosis Society Canada support forum! Say hello and leave us messages here.....
scrotzulla: Hi everyone.I'm new here and still waiting for a proper diagnosis.In my reactions lately, I'm getting severely dehydrated and my blood pressure drops significantly and I go into shock within a few minutes. What's the best thing to do in this instance? Apr 7, 2014 14:03:50 GMT -5
Paula: Ear meds? What medications are safe? or alternate treatment? Itchy/irritated/tinnitus/blocked Dr. prescribed a drop with Cipro. Concerned re adverse reactions as I have had many to meds. Apr 9, 2014 9:08:51 GMT -5
Mars: Does anyone else have lessions on their face? Anything work on them? Apr 22, 2014 18:33:51 GMT -5
kathy59: I am new here and was just told a skin biopsy was positive for TMEP and is being sent to another city for further testing. I am feeling very overwhelmed. Where do I start? Jun 17, 2014 22:23:09 GMT -5
kathy59: My skin biopsy came back as positive for mastocytosis as well the syrum tryptase test came back high so I am now waiting for a bone marrow biopsy. Should I be getting a medical alert bracelet now or should I wait until after the bone marrow biopsy? Aug 13, 2014 14:30:37 GMT -5
Carrie: Hi Kathy59, yes I would suggest you register with MedicAlert. To start, I've summarized (as best I can) how to live with this illness on MSC main website. Read http://mastocytosis.ca section on Mastocytosis and also the Patient Experience Letter. Aug 28, 2014 10:07:18 GMT -5
pamelamerritt: Where do I go to find out if there's another member in my area? I live in Kingston, Ontario, Canada. Sept 5, 2014 18:56:22 GMT -5
jessicaq: My son was just prescribed Dicyclomine. Does anybody take this? And if so has it helped much? Sept 12, 2014 15:53:14 GMT -5
Samson1484: I've been suffering from Mastocytosis for the past 16 years without a diagnosis despite having seen over 70 doctors. My worse symptom occurs whenever I eat/drink anything. Simple food contact on oral mucosa induces an intense systemic allergic-like reactio Sept 16, 2014 19:23:13 GMT -5
Samson1484: does anybody know of a specialist in Toronto, Ontario that recognizes or is open to a possible diagnosis and treatment of Mast cell disorders? Sept 16, 2014 19:25:08 GMT -5
sonamgirl: Hello: A quick question. I'm in the middle of being diagnosed and going for a skin biopsy in mid October. Should I start my prescription strength reactine and singulaire prior to seeing the dermatologist? Will these medications affect the results? Oct 1, 2014 10:36:05 GMT -5
tferguso: This question is for those with MCAD. I have a normal skin biopsy and normal tryptase, I need to know if any of you have found that the severity of your reactions and the number of triggers has increased over time? Mine have and I am concerned about it. Oct 20, 2014 8:05:07 GMT -5
kathy59: I just got my bone marrow biopsy results and have been diagnosed with systemic masto. My dermatologist had started me on reactine and doxeprin but the hematologist took me off doxeprin and told me to start zantac. Does this sound like right treatment? Nov 6, 2014 10:05:50 GMT -5
maggie122: Anyone else having problems with there eyes? Mine are extremely sore, dry and there is a small lump on eyelid. Nov 10, 2014 4:13:26 GMT -5
crimsonbird: I hope in the sharing of my journey with mastocytosis that you will feel supported in your journey. I was just diagnosed with mastocytosis through a skin biopsy. I am awaiting a bone marrow biopsy. I have peripheral neuropathy from the condition. Nov 10, 2014 13:39:41 GMT -5
truthseeker: Dr. Jason Lee thinks I have negative serum tryptase mastocytosis. Why is he so concerned? Tells me it is an extremely rare form of mastocytosis. Battling pneumonia for fourth time. On antibiotic. Very weak. Thoughts on things to do to help recover? Nov 18, 2014 7:43:34 GMT -5 *
jessicaq: Maggie122 My 6 yr old son gets very sore eyes too. Not sure if it is masto related or not. But I'm thinking it is. Nov 26, 2014 20:37:48 GMT -5
Peggy: I am beginning to wonder if my daughter has mastocytosis. Is its a common cause for burning tongue and chemical food intolerances or does a person have to have a lot of other symptoms to have this condition. I know she is allergic to her histamine. Dec 10, 2014 21:21:07 GMT -5
SarahSmile: Does anyone know of a doctor familiar with mast cell activation who is in Edmonton or would be willing to consult with a doctor here? Please, I've been repeatedly hospitalized, bedridden and deteriorating for over 14 months now and desperately need help!! Dec 18, 2014 18:10:45 GMT -5
melissa4142: I have been dealing with a chronic mucusy sinus and coughing up mucus now for the past 3 weeks. It is mild to moderate but there has been a couple of times when exposed to chemicals it got extremely worse. Does MCAS cause these kinds of problems? Dec 19, 2014 10:07:26 GMT -5
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