We're doing our best dealing with illness and trying to keep up with social media efforts. Sometime in 2013, Proboards is upgrading all their forums with new look and integrated social media. That means our tweets will show here on the forum in constant stream. It will be easier to follow us in both places by just checking the forum. We're looking forward to that. We're also considering integrating the forum with our main website and paying Proboards. Changes coming in 2013 to make a one stop site link for all our efforts online in one place!
New research found will be updated again on the forum eventually. In the meantime, we update our twitter at least once a week (hard to do more often due to illness) and many helpful links are posted there.
Carrie: Dear everyone,it appears MSC is not managing this forum. For support and info, please see mastocytosis.ca and/or groups on social media sites. I also highly recommend www.mastattack.org/ . My best wishes to everyone.
Sept 26, 2017 11:36:38 GMT -5
Rosy: This board dying makes me so sad! I've yet to find somewhere else that is as Nice and "community" orientated for Canadians.
Jun 30, 2018 19:52:06 GMT -5
Carrie: Hey Rosy, I’m sorry too. It couldn’t be helped due to health. Maybe reach out to Shawna via the main website at Mastocytosis.ca
Nov 29, 2018 21:41:50 GMT -5